||Introduction. With 7 millions inhabitants, 3% population
growlh, Benin is considered as the most affected by hereditary
hemoglobinic abnormalities amongst ail Benin
Gulf countries. Hemoglobin (Hb) Hb S prevalence is 24%
versus 9% for Hb C. The rate or sickle cells disease
(SCO) in the population is 4%.
MonlJgement of the disease. SCO management began in
the seventies in free out-patients consultations, Antalgics,
antipyretics, non steroid anti·inflammatory drugs, antibiotics,
blood transfusion, folie acid supplementalion and
hydratation are usual treatments, SCD management got
improvement since. the National University Hospital
(CNHU) created lhe Haematology Service in 1988. The
SCO patients represent 65% of the work load and they
consume 35% of blood collected· by the Cotonou blood
transfusion centre. Out of 519 patients hospitalized in two
years, 63.6% were l-lb SS and 14.8% Hb Sc. Hb SS subjects
were mainly.hospilalized for anaemic syndrome
(40.6%), hyperalgie allacks (34.5%) and infections
(20.9%). Sustained follow·up increased patients'Iife qualily.
This results in a need of addressing their training,
occupation and marriage issues, In 1991, patients were
charged for the medical consultation; then paying profession
al services progressively reduces (60%) the
HaematoJogy Service altendance rate from 1991 to date.
Reseorch. Traditional medicine, assessed through phytotherapy,
seems to be only symplornatic. Other research
topics concem psychosocial aspects, blood transmitted
diseases, chroniccomplications, feasibility of physical
aClivities as integration and self esteem factors.
Documents are available to support fair information on
SCD. SCO financial bur<.Jen has becn evaluate<.J. ASCO
Centre for children and pregnant women (.1990) and a
National Programme are availablc.
Associative (lctivities. Associative activities are implemenlcd
1O rai se solidarity among patients, their relatives and the
population. Ifs the main goal of Benin Slckle Cells
Association (Association Béninoise de Lutte contre la